Why We Need to Remain Aware about Who is Collecting our Personal Health Information
Facebook's efforts to collect personal health information from hospitals
Sources reported from Pro Publica:
"Facebook has asked several major U.S. hospitals to share anonymized data about their patients, such as illnesses and prescription info, for a proposed research project. Facebook was intending to match it up with user data it had collected, and help the hospitals figure out which patients might need special care or treatment.
The proposal never went past the planning phases and has been put on pause after the Cambridge Analytica data leak scandal raised public concerns over how Facebook and others collect and use detailed information about Facebook users."
The original article from CNBCFacebook sent a doctor on a secret mission to ask hospitals to share patient data
A link to the Tincture article titled, Our Cancer Support Group On Facebook Is TrappedWhen facing the trauma of a new cancer diagnosis and/or genetic test results, the last thing on your mind is whether you should be reading 30 page privacy policies that tech platforms require. Rather, patients need access to information. Patients need it fast. We need it from people who have been down the same path and who can speak from personal experience. And that information exists within these peer support groups on Facebook. We need to be protected when we are vulnerable to those who can u